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Californians urged to delete DNA data as 23andMe signals uncertainty over future

Sacramento, California – An urgent consumer notice has been issued by California Attorney General Rob Bonta for consumers of 23andMe, the genetic testing company renowned for its personalized DNA analysis. The warning follows 23andMe’s stated financial difficulties, therefore raising questions about its future activities. The company indicated substantial uncertainty about its ongoing sustainability in a securities filing, which raised questions about the large volume of private genetic data it holds.

Recognizing the risks associated with such data, especially in times of corporate instability, AG Bonta emphasized the protections available under California’s robust privacy laws. He highlighted that Californians have the right to take control of their genetic information through the Genetic Information Privacy Act (GIPA) and the California Consumer Privacy Act (CCPA). These rules allow customers to seek the deletion of their data and the destruction of any kept biological samples.

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Bonta gave customers wanting to use their rights a detailed walk-through instruction. First, consumers should log onto their 23andMe account and find the “Settings” section of their profile. Click “View” at the bottom of the page under “23andMe Data,” to access and, if requested, download their genetic data for personal use. They can then go to the part on “Delete Data” and choose “Permanently Delete Data.” The request will be finalized by an email confirmation from 23andMe.

Changes can also be made in the “Preferences” section of the account settings for people who have chosen to save their biological samples with 23andMe. Users of this section may revoke rights and ask for the destruction of their kept samples.

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Consumers who have agreed to have their genetic data used for research also have the right to withdraw at any point. This is handled under the “Research and Product Consents” section, also included in the account settings.

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Apart from letting Californians erase their genetic data, the CCPA requires the destruction of all personal data collected by companies. This comprehensive approach guarantees consumers’ ability to properly protect their personal information and privacy.

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In light of these developments, Attorney General Bonta urges all Californians who are customers of 23andMe to consider these rights seriously and take necessary actions to safeguard their genetic information. On the official state website, individuals can get more details regarding the CCPA and consumer rights under California law. By being proactive, Bonta seeks to guarantee that consumer rights and data privacy are not sacrificed in the face of financial uncertainty.

To learn more about the CCPA, please visit here.

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